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Overview

Some of the goals of this site is to provide a means:
  • To provide a forum where anyone around the country or the world can obtain information or provide information they have experienced as a result of this disease.
  • To provide current and historical information on studies and papers relating to this disease.
  • To provide current and historical information relating to the health risks of using beryllium.
  • To provide current and historical information relating to regulations governing the use and control of beryllium.
  • To provide current and historical information of the nature of this disease and its effects on the human body.
  • To provide contacts for medical diagnostic procedures and treatment.
  • To provide contacts for legal assistance in processing Workman’s Compensation Claims.
  • To provide sources for congressional contacts for the purpose of proposed legislation concerning workplace controls, medical testing and treatment, insurance benefits, and Workman’s Compensation issues.

National Advocates for Beryllium Education and Reform

Beryllium fumes and dust are among the most toxic substances known. The World Health Organization’s International Agency for Research on Cancer, and Agencies of the U.S. Department of Health and Human Service, such as the National Institute for Environmental Health Sciences, and the National Institute for Occupational Safety and Health, have classified beryllium as a cause of cancer in humans. The Environmental Protection Agency (by Act of Congress); lists beryllium as a toxic air pollutant that needs to be controlled in our communities. Communities become contaminated with beryllium from nearby factories and mines or by uncontrolled burning of fossil fuels.

The toxic effects of beryllium are particularly evident among workers, who when exposed to beryllium fumes and dust, can also develop Chronic Beryllium Disease, or CBD. Recent studies indicate that CBD can develop after short exposures to beryllium and at low levels of exposure. CBD is a systemic disease affecting many parts of the body, but is best known for impairing the lungs. Many people with CBD become pulmonary invalids, dependent on oxygen 24 hours a day. There is no cure for CBD and drug treatments for the control of its symptoms have serious side effects. CBD can be fatal.

Beryllium is found in a variety of workplaces. Occupations which are at risk for beryllium disease include beryllium metal and alloy workers, scrap metal reclaiming, electronic industries (transistors, heat sinks, X-ray window), ceramic manufacturing, space and atomic engineering (rocket fuels, heat shields, weapons), laboratory workers, dental technicians, and ore extraction. Any process or work place where beryllium can become air borne, in the form of small particles or fume, presents a serious health hazard for workers.

National Advocates for Beryllium Education and Reform (NABER) is a self-help and advocacy group established to support beryllium workers and their families, and to foster beryllium education and research. NABER is an extension of the Colorado, Ohio and Tennessee Beryllium Disease Support Groups. NABER does not take the place of these pre-existing Support Groups. Rather, NABER provides an organizational structure for solidifying and extending mutually supportive ties across geographical boundaries.

NABER provides individuals with information about beryllium disease, physicians, medications, attorneys, worker’s compensation, the history of the beryllium industry, etc. NABER also brings beryllium workers, their families, and others, together for support and problems solving. Having a national organization is an exciting turn of events.

NABER’s long term goals are directed at education, research, and serving as a resource to the wider community. Providing social support to beryllium workers and their families will, of course, continue. Current and former beryllium workers and their families, health professionals, and others with an interest in occupational and environmental health, are encouraged to contact NABER

20 CFR Parts 1 and 30
Performance of Functions Under This Chapter
Claims for Compensation Under the Energy Employees Occupational Illness Compensation Program Act
Interim Final Rule – Coment period ends August 23, 2001

HR-1534
To designate the federal agencies responsible for implementing the
Energy Employees Occupational Illness Compensation Program Act

We can get 0800 numbers in the UK that can point to our centre.  We are currently considering this option so that people in the UK can telephone us for free.  We will have to pick up the cost of the call for the 0800 number so it is not an easy decision to make.  We couldn’t believe it when we enquired about this service.  We thought that only companies in the UK can buy free phone numbers but it seems that this market has gone global.  I don’t think that we will receive many phone calls from the UK but just like in the USA (we call free phone – toll free) it seems to be a popular choice.

Committee on the Judiciary Hearing
Testimony Presented to Subcommittee on Immigration and Claims
Legislative hearing on
H.R. 675, H.R. 3418, H.R. 3478, H.R. 3495, H.R. 4263, and H.R. 4398
concerning compensation for beryllium-related illnesses
Additional Testimony that was placed into the congressional record by the committee.

H.R. 4205 – Defense Authorization bill ; Military Construction Authorization Act for Fiscal Year 2001
National Defense Authorization Act for Fiscal Year 2001

Senate struck all after the Enacting Clause and substituted the language of S. 2549 amended. Passed Senate in lieu of S. 2549 with an amendment by Yea-Nay Vote. 97 – 3. Record Vote Number: 179′ Senate ordered measure printed as passed. (text of measure as passed Senate: CR 07/14/2000 S6871-6982). July 17, 2000 – Message on Senate action sent to the House.

S. 2549 – Defense Authorization bill ; Military Construction Authorization Act for Fiscal Year 2001
National Defense Authorization Act for Fiscal Year 2001
Amendment No. 3250 – Energy Employees Occupational Illness Compensation
which should be called
“The DOE, DOE Contractors and Beryllium Vendors legal compensation act of 2001″
There needs to be a Federal Advisory Committee on this matter before any final legislation is passed.

This is the most appalling piece of legislation to date. I encourage everyone to read this closely. As I understand it Senator Thompson took what started out to be good legislation and transformed it into this piece of crap without discussion or a vote. Clearly those responsible for this one are way out of touch with what is going on. This bill must be changed or defeated and adequate time and thought given to what is in each and every part of the bill and the effects on the people it was intended to help. This bill not only rewards those responsible for the conditions requiring this type of legislation but also causes more irreversible harm and complications. This is a bad one and anyone who allows it to pass should be very, very ashamed. Evidently it is possible for some of our elected officials to look their families in their eyes and say look how I just screwed these people again and still go to bed and sleep like a baby. Clearly those who are responsible for this one have no place in public service. One final note, anyone, and I mean anyone that thinks that this is good legislation or a step forward either have not read this amendment or any of the previous bills or don’t understand the implications of what this says.