This web site was formally launched on
March 12,
1996 by Michael Jackson a member of the Beryllium Support Group which
meets
monthly at the National Jewish Medical
and
Research Center in Denver, Colorado. The intent is to provide a
platform
where any other Beryllium Support Group regardless of affiliation or
location
can freely participate in the presentation of or transfer of
information
relating to this incurable disease.
Some of the goals of this site is to
provide a means:
To provide a forum where anyone around
the country
or the world can obtain information or provide information they have
experienced
as a result of this disease.
To provide current and historical
information on
studies and papers relating to this disease.
To provide current and historical
information relating
to the health risks of using beryllium.
To provide current and historical
information relating
to regulations governing the use and control of beryllium.
To provide current and historical
information of
the nature of this disease and its effects on the human body.
To provide contacts for medical
diagnostic procedures
and treatment.
To provide contacts for legal
assistance in processing
Workman's Compensation Claims.
To provide sources for congressional
contacts for
the purpose of proposed legislation concerning workplace controls,
medical
testing and treatment, insurance benefits, and Workman's Compensation
issues.
April 4, 2001
HR-1534
To designate the federal agencies responsible for implementing the
Energy Employees Occupational Illness Compensation Program Act
Friday May 25, 2001
20 CFR Parts 1 and 30
Performance of Functions Under This Chapter
Claims for Compensation Under the Energy Employees Occupational Illness
Compensation Program Act
Interim Final Rule - Coment period ends August 23, 2001
Conference Report On H.R. 5408, Floyd D. Spence National Defense
Authorization
Act For Fiscal Year 2001
(Senate - October 12, 2000)
(Congressional Record - Pages S10334
through S10394)
October 6, 2000
H.R. 5408 - Floyd D. Spence National Defense Authorization Act For
Fiscal Year 2001
Title XXXVI - Energy Employees Occupational Illness
Compensation
Program "The DOE, DOE Contractors and Beryllium Vendors legal
compensation
Act of 2001" (Pages 1, 30, and 1231 through 1281)
Conference Report On H.R. 5408, Floyd D. Spence National
Defense Authorization
Act For Fiscal Year 2001
(House of Representatives - October 06, 2000)
(Pages 1,2,3,29 and
979
through 985)
July 17, 2000
H.R. 4205 - Defense Authorization bill ;
Military
Construction Authorization Act for Fiscal Year 2001
National Defense Authorization Act for
Fiscal
Year 2001
July 13, 2000 - Senate struck all after the Enacting Clause
and substituted
the language of S. 2549 amended. Passed Senate in lieu of S. 2549 with
an amendment by Yea-Nay Vote. 97 - 3. Record Vote Number: 179' Senate
ordered
measure printed as passed. (text of measure as passed Senate: CR
07/14/2000
S6871-6982). July 17, 2000 - Message on Senate action sent to the
House.
June 8, 2000
S. 2549 - Defense Authorization bill ;
Military
Construction Authorization Act for Fiscal Year 2001
National Defense Authorization Act for
Fiscal
Year 2001
Amendment
No. 3250 - Energy Employees Occupational Illness Compensation
which should be called
"The DOE, DOE Contractors and Beryllium
Vendors
legal compensation act of 2001"
There needs to be a Federal Advisory
Committee
on this matter before any final legislation is passed.
This is the most appalling piece of
legislation
to date. I encourage everyone to read this closely. As I understand it
Senator Thompson took what started out to be good legislation and
transformed
it into this piece of crap without discussion or a vote. Clearly those
responsible for this one are way out of touch with what is going on.
This
bill must be changed or defeated and adequate time and thought given to
what is in each and every part of the bill and the effects on the
people
it was intended to help. This bill not only rewards those responsible
for
the conditions requiring this type of legislation but also causes more
irreversible harm and complications. This is a bad one and anyone who
allows
it to pass should be very, very ashamed. Evidently it is possible for
some
of our elected officials to look their families in their eyes and say
look
how I just screwed these people again and still go to bed and sleep
like
a baby. Clearly those who are responsible for this one have no place in
public service. One final note, anyone, and I mean anyone that thinks
that
this is good legislation or a step forward either have not read this
amendment
or any of the previous bills or don't understand the implications of
what
this says.
See what your
Senator
has to say about this proposed legislation.
April
17, 2000 Written
comments
to:
President Clinton
Vice President Gore
Secretary of Energy Richardson
Assistant Secretary of Environmental Safety
and
Health Michaels
Not a complete list but minimal benefits
that
any good legislation must include.
Corrected item 3b - 5/12/00 "would normally
receive
and be non-taxable"
NABER
National Advocates for
Beryllium Education
and Reform
Beryllium fumes and dust are among the
most toxic
substances known. The World Health Organization's International Agency
for Research on Cancer, and Agencies of the U.S. Department of Health
and
Human Service, such as the National Institute for Environmental Health
Sciences, and the National Institute for Occupational Safety and
Health,
have classified beryllium as a cause of cancer in humans. The
Environmental
Protection Agency (by Act of Congress); lists beryllium as a toxic air
pollutant that needs to be controlled in our communities. Communities
become
contaminated with beryllium from nearby factories and mines or by
uncontrolled
burning of fossil fuels.
The toxic effects of beryllium are
particularly
evident among workers, who when exposed to beryllium fumes and dust,
can
also develop Chronic Beryllium Disease, or CBD. Recent studies indicate
that CBD can develop after short exposures to beryllium and at low
levels
of exposure. CBD is a systemic disease affecting many parts of the
body,
but is best known for impairing the lungs. Many people with CBD become
pulmonary invalids, dependent on oxygen 24 hours a day. There is no
cure
for CBD and drug treatments for the control of its symptoms have
serious
side effects. CBD can be fatal.
Beryllium is found in a variety of
workplaces.
Occupations which are at risk for beryllium disease include beryllium
metal
and alloy workers, scrap metal reclaiming, electronic industries
(transistors,
heat sinks, X-ray window), ceramic manufacturing, space and atomic
engineering
(rocket fuels, heat shields, weapons), laboratory workers, dental
technicians,
and ore extraction. Any process or work place where beryllium can
become
air borne, in the form of small particles or fume, presents a serious
health
hazard for workers.
National Advocates for Beryllium
Education and
Reform (NABER) is a self-help and advocacy group established to support
beryllium workers and their families, and to foster beryllium education
and research. NABER is an extension of the Colorado, Ohio and Tennessee
Beryllium Disease Support Groups. NABER does not take the place of
these
pre-existing Support Groups. Rather, NABER provides an organizational
structure
for solidifying and extending mutually supportive ties across
geographical
boundaries.
NABER provides individuals with
information about
beryllium disease, physicians, medications, attorneys, worker's
compensation,
the history of the beryllium industry, etc. NABER also brings beryllium
workers, their families, and others, together for support and problems
solving. Having a national organization is an exciting turn of events.
Our short term goals include building on prior accomplishments, like
maintaining
this WEB site, and expanding the hard copy newsletter currently being
written
and produced by the Ohio Chapter of NABER. The intention is to offer
the
newsletter to all beryllium workers, their families, and to others with
an interest in beryllium disease or occupational and environmental
health.
NABER's long term goals are directed at
education,
research, and serving as a resource to the wider community. Providing
social
support to beryllium workers and their families will, of course,
continue.
Current and former beryllium workers and their families, health
professionals,
and others with an interest in occupational and environmental health,
are
encouraged to contact NABER by responding to the webmaster@beryllium.org
, theresan@umich.edu or
call
(517) 547-6746.
(Pronounced ber-il' le-um) -
Beryllium
was discovered in 1797 by Vauquelin in Paris. Pure beryllium is a hard
grayish metal. In nature, beryllium can be found in compounds in
mineral
rocks, coal, soil, and volcanic dust. Two kinds of mineral rocks,
bertrandite
and beryl, are mined commercially for the recovery of beryllium. Very
pure
gem quality beryl is better known as either aquamarine (blue or
blue-green)
or emerald (green). Beryllium is present in a variety of compounds.
Beryllium and beryllium alloys are used
in electronics
components, fiber optics components, nuclear weapons, nuclear reactors,
aircraft-satellite-space vehicle structures, X-ray transmission
windows,
mirrors, ceramics, bicycle frames, golf club heads, and as an additive
in solid propellant rocket fuels.
U.S. companies have produced beryllium
and some
beryllium compounds commercially since the 1940s and beryllium oxide
since
1958.
Web Sources for Beryllium and other
Elements
What
is Beryllium? - US Department of Energy Beryllium Worker Protection
Web Site.
Web
Elements from the Department of Chemistry at the University of
Sheffield
in South Yorkshire, England. Properties of Beryllium including General,
Chemical, Physical, Nuclear, Electronic, Biological, Geological,
Crystallographic
Reduction potentials, Isotope abundances, Electronic configurations,
and
Ionization enthalpies.
Who provides Material Safety Data
Sheets? OSHA
does not prepare or dictate the specific statements to be included on
material
safety data sheets (MSDS). Chemical manufacturers and importers of
hazardous
chemical products prepare MSDS. They make the determinations as to what
chemicals are covered within the context of the standard's requirements
and design the MSDSs appropriately.
NJC 1995 Scientific Report ;
Immunologic Mechanisms
in Occupational, Environmental, and Granulomatous Lung Disease ; Lee S.
Newman, M.D., M.A.
NJC 1995 Scientific Report ; Research
Summary for
the Non-Scientist ; Lee S. Newman, M.D., M.A. ; Immunologic Mechanisms
in Occupational Environmental and Granulomatous Lung Disease
NJC Scientific Annual Report 1993 -
Dept. of Medicine
; Kathleen Kreiss, M.D. , Occupational Health ; Beryllium disease
epidemiology.
NJC Scientific Annual Report 1993 -
Dept. of Medicine
; Lee S. Newman, M.D. , Immunologic Mechanisms in Occupational,
Environmental,
and Granulomatous Lung Disease ; A. Chronic beryllium disease and
sarcoidosis:
Role of the T lymphocyte in immunopathogen-esis. ; B. Chronic beryllium
disease: Role of the alveolar macrophage in im-munopathogenesis. ; C.
Chronic
beryllium disease: Immunologic tools in workplace screening and
diagnosis.
; D. Chronic beryllium disease: natural history.
Environmental Pathology I:
Environmental Lung Disease
; Ed Friedlander, M.D., Chairman, Dept. of Pathology ; University of
Health
Sciences , Sept. 25, 1995 ; discusses berylliosis and other lung
diseases.
Environmental Health Perspectives
monthly journal
; Volume 102(6-7) June-July 1994 ; Lang (p. 526) ; Health
Risks of Beryllium. explores the effects of occupational exposure
to
beryllium and possible means of preventing these effects.
Environmental Hazards Assessment
Program of the Medical
University of South Carolina ; Assessment of Genetic Risks to
Environmental
Diseases ; Janardan P. Pandey, Ph.D.
New
Publication on Chronic Beryllium Disease Studies - Results of
research
studies on beryllium and LPT, and the ongoing medical surveillance
program
for detecting CBD in DOE workers, conducted by the Office of
Occupational
Medicine (EH-61), will be detailed in a future Safety and Health
Bulletin,
"Chronic Beryllium Disease at DOE" (DOE/EH-0498, Issue 95-8). For more
information on these studies, contact Paul Wambach (EH-61) at (301)
903-7373
Human Mast Cell Basic Fibroblast Growth
Factor in
Pulmonary Fibrotic Disorders ; The American Journal of Pathology:
Volume
149, Number 06; Pages: 2037-2054; December 1996 Yoshikazu Inoue,
Talmadge
E. King, Jr., Sally S. Tinkle, Karen Dockstader, Lee S. Newman
American Thoracic Society - Pulmonary
Epithelial
Cell Injury and Alveolar–Capillary Permeability in Berylliosis
156:109–115
; Inoue Y, Barker E, Daniloff E, Kohno N, Hiwada K, Newman LS
American Thoracic Society - Observer
Variation and
Relationship of Computed Tomography to Severity of Beryllium Disease
155:2047–2056
; Daniloff EM, Lynch DA, Bartelson BB, Newell JD, Jr, Bernstein SM,
Newman
LS. Am J Respir Crit Care Med 1997
Mechanisms of pulmonary granulomatous
diseases ;
Milton D. Rossman, M.D.
Airborne pollutants and the immune
system ; Joseph
F. Albright, PhD and Robert A. Goldstein, MD, PhD ; National Institute
of Allergy and Infectious Diseases, Bethesda, Maryland ; Otolaryngol
Head
Neck Surg 1996; 114:232-8.
Colorado Department of Public Health
& Environment
(CDPHE) ; Disease Control & Environmental Epidemiology Division
(DCEED)
; Rocky Flats Health Studies
Animal
Models of Beryllium-induced Lung Disease ; Gregory L. Finch, Mark
D.
Hoover, Fletcher F. Hahn, Kristen J. Nikula, Steven A. Belinsky,
Patrick
J. Haley, William C. Griffith ; 973-979
Characterization
of Beryllium Aerosols Associated with Machining Operations ; J.W.
Martyny,
Tri-County Health Department, Commerce City, CO; M. Hoover, Lovelace
Respiratory
Research Institute, Albuquerque, NM; K. Ellis, Colorado State
University,
Fort Collins, CO; M. Mroz, L. Newman, E. Daniloff, National Jewish
Medical
and Research Center, Denver, CO
A listing of Hospitals, Universities,
Research Centers,
and laboratories that study and/or treat individuals suspected of
having
or who have been diagnosed with Chronic Beryllium Disease. Also lists
laboratories
that perform Lymphocyte Transformation Tests.
Sources for
Journal Articles,
Abstracts, and Papers Health, Wellness and
Biomedical
information Drug information
Beryllium
Bibliography5/22/99
- 1502 journal articles available through Medline and HealthGate ; The
original Beryllium Bibliography 9/27/97 ; LLNL ES&H Gopher
Services,
Inhalation Toxicology Research Institute's "Bibliography on the
Biomedical
and Environmental Aspects of Beryllium" 2551 Citations ; DOE Historical
Documents ; DOE Oakridge (8192 documents) and Rocky Flats Public
Reading
Room Lists.
PubSCIENCE
- Developed by DOE's Office of Scientific and Technical
Information
and made available to the public in partnership with the U.S.
Government
Printing Office (GPO).
The Office of Environment, Safety
and Health is investigating
the possibility of launching a new federal workers' compensation
program
that will provide medical care and wage loss benefits to cover current
and former contractor workers who have suffered illnesses through their
work in DOE.
"To the extent allowable by law,
DOE field counsel
and contractors are not to contest the "work relatedness" for workers'
compensation claims of confirmed cases of Chronic Beryllium Disease
and,
in those jurisdictions that allow such claims, of sensitization to
beryllium."
Committee on the Judiciary Hearing -
September 21,
2000 - Testimony
Presented
to Subcommittee on Immigration and Claims - Legislative hearing on
H.R. 675, H.R. 3418, H.R. 3478, H.R. 3495, H.R. 4263, and H.R. 4398
concerning
compensation for beryllium-related illnesses
See Announcements
for
the latest information on H. R. 5408 - Floyd D. Spence National
Defense Authorization Act For Fiscal Year 200 ; Title XXXVI - Energy
Employees
Occupational Illness Compensation Program
Includes links to Federal Agencies,
State Home Pages
and Agencies, ANSI Standards for Respiratory Protection, OSHA
Regulations,
and the U.S. House of Representatives Internet Law Library for the Code
of Federal Regulations (CFRs).
Search
the Web for more info using the Search Engine of your choice.
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